Another year has passed…
Why is there still not a cure? Why hasn’t the government put more emphasizes on research for Cerebral Palsy. Why are opportunities limited? Why are we suppressing and shutting down individuals? Why are we ostracizing them? For such an overwhelmingly common disorder, you would think that those living with CP would be able to have the same healthy lives of those of the rest of their community.
Honestly, I’m not bitter that we are so behind in mending the damage done to ones brain and having more open doors. I’m frustrated that it takes awareness days to remind everyone the significance of such a challenging disorder. But as long as I’m living I will stand for CP and spread awareness to all.
Linden reminds me everyday of the jumped hurdles he must go through to find peace and independence. His own frustration with not being heard, understood or taken seriously is showing signs of emotional breaking. As he gets older he is realizing his differences among his peers. Furthermore, his new baby brother will show him of the things he “can’t” do. While I am not one to say my son “can’t” do things but being realistic, there will be things that won’t be the same. Over spring break I was playing on the playground with Linden and a family member was with me. Linden was so excited to be playing and being among other children. He was bouncing all over the place (with support). He wanted to climb the rock wall, monkey bars and stepping bridge. All these things he pointed at, my family said he can’t do that. Notice I didn’t use the quotations. The word can’t was used in a perspective of his independence. Sure he can’t do it alone, he will need help but to say he “can’t” do it would mean there would be no way in the world possible. I challenge that word! CAN’T…think about it…I made sure he did it all. He CAN do the rock wall! He CAN do the monkey bars! He CAN do the stepping bridge.
I tell this story to give different view points on word choices. Some of my favorites are disability versus ability and disability versus eligibility. I’ll hold on those for now (another day, another post). I speak, stand and fight for Cerebral Palsy awareness not only for a cure but for opportunities. Why have limits on things? Why use words that actually have no bearing on ones ability? Why have stipulations on eligibility?
I ask all those reading today to stop and think about those with CP. They are a part of us. They make up our future. They inspire our every being. They teach us…
Cerebral Palsy Awareness Day is Sunday, March 25th. Spread awareness by wearing green!
P.S. Sorry for the long time between posts. Life has been pretty crazy for my family since the summer but we’re back! Stay tuned for the latest on Linden and his new baby brother.