I have one tired little man…who am I kidding…I’m exhausted!
Our days are always filled with go, go, go. It feels like we’re energizer bunnies with constantly charged batteries. I often wonder how in the world Linden handles such busy days. I know he’s tired, beyond the possibility of having reason or the capability to do much in the evenings. Even knowing this, I still keep him enrolled in his evening activities. He enjoys them and talks about them fondly. I’m sure a break ever now and again would be good.
Now on to our crazy busy Thursday…
The bus picked him up bright and early at 6:32 am. While he was super excited last night for the bus today, he was less than thrilled to wake up. I honestly don’t blame him. He has a full and tiring day ahead of him. I forewarned his teacher of his grumpy mood and as always she responded with uplifting words to make this momma feel better.
I’ve pushing his readings on him heavily and by a couple of wake up calls, I realized I need to face reality. I want Linden to keep par with his kinder peers. Every parent wants them to keep up and continue to progress. I lost sight of “Linden” progress by watching his peers. You see his peers are reading and are quite savvy at their sight words. These are major struggles for Linden. Instead of me pushing him to read, I should have been focusing on his goals like letter recognition and sounds. After taking a step back, it hit me…Linden is moving mountains with his progress. He’s doing amazing and comparing him is unfair. He’s a smart, kind and energetic kid. He has come from not being able to form words when 2.5 years to now putting sentences together. He sings songs in full and writes his name. Those things are progress and significant at that! Accepting his amazement are valuable to not only me but to him.
Sorry back to our busy day. During the day I get an email from our wonderful caseworker at Any Baby Can giving me some contact resources for foundations that will possibly help pay for Linden’s outstanding horse therapy bill as well as get him an adaptive bicycle. In no time I was emailing and filling out applications (on my lunch of course; for those of you reading that I work with hahahaha). I already have a call set up for the bike. Fingers crossed!
Also I received an email about setting up Linden’s wheelchair basketball practice. I signed him up with the YMCA with his typically developing peers. The Y has been amazing about accommodating Linden. Hopefully we can get him on the court this weekend with his teammates, Fin and Brenna. I’ll post pictures once I get them.
Once off work I rush home to change, rush over to his sitters house to pick him up and then rush over to our local YMCA to get ready for swim lessons. By this point I’m spent! You see from my last post, Linden got a snazzy new wheelchair. Well with that, it’s heavier! Not complaining because we fought hard for that thing but ugh! Perhaps looking into a vehicle lift may be in my future. Loading and unloading…loading and unloading…loading and unloading………
After getting Linden changed, I find myself with 30 minutes of peace…wait what!? Peace!? I can sit and completely check out to la la land while his private teacher works with him…..of course I don’t. I watch and smile with adornment. He’s doing so great. He’s mastered floating on his back, standing in waist deep water and blowing bubbles. Instead of having a second for me, I stay in the game. I stare at him and just reminisce on where he was and where he is now. He amazes me everyday.
Done! No we have to wait for the handicap bathroom first so we can get changed. Pet Peeve Alert!!! Seriously these bathrooms are for those that “need” them. They have locker rooms for a reason. It infuriates me to wait for 20 minutes while a mom and her teen girls take up the bathroom for who knows how long when there is no need. LOCKER ROOM! My son can’t go into the women’s locker room per Y rules and due to his need for a handicap toilet and such we need that bathroom. If it happens again I will for sure speak up.
Now to get dinner. I’m too tired to cook nor fuss with leftovers so fast food it is. Of course it’s an argument…he can’t make up his mind if he wants a burger or hotdog (mom won and he got a hotdog). After 4 trips from the car to the house just to unload everything, we can finally sit down to eat. Boy we were starving as we ate it all!
Linden picks the most inopportune times to go #2. You see, we are still working on using the toilet for his business but he’s terrified. So while we slowly work on that, he uses a diaper. All I wanted to do was give him a bath, take a shower and go to bed. Things just can’t be that easy.
Well after a strong will child made bath time not so fun, he is fast asleep. He was tired! I am tired! I must say being a single momma on daddy’s shift days are exhausting. Not really sure how I found the energy to blog tonight. Actually I do…hear me out…..
Families of special kiddos are never on break. We are on call 24/7. We are always rushing to something; doctors, therapies, school….We are in constant movement; helping with the potty, washing hands, making special food, preparing sensory safe clothes, sewing patches in his knee holes from crawling, horse therapy, swim lessons, bath time, teeth brushing, getting dressed, putting on and off orthotics, nightly medicine routine, prepping for his special lunches, making two meals (because you know he won’t eat the first), playing guess that word (sometimes he’s hard to understand even for me), gait training work, follow up therapies, verifying that all his communication devices are charged and ready to use at a moments notice, homework…..the list goes on and on. So if you see one of us and it looks like we are in a daze, give us a moment. We need it!
So here is my shout out to all the special needs parents and guardians as well as those single parents…KUDOS! Your dedication and optimism are what make our kids great.