Colorful Journey of Hope

Join me as I share my family adventures and our journey with our extraordinary son who has cerebral palsy.

Photos by whitneydionizio@gmail.com

Lion’s Camp 2019

June 16, 2019 - No Comments

We took Linden to Kerrville on this past Sunday knowing we would leave him for an entire week. There was no way I could leave him. I know he would have fun but wouldn’t he miss me? Wouldn’t he wonder when we were coming back? To say the emotional separation was difficult is undeniably hard. Leaving my child for one week without me is one of the most difficult things…

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Answered Insurance Prayers

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From the moment Linden was diagnosed at 10 months old, we have struggled financially to provide everything for him. Since then he has had constant therapies and doctor visits. His immune system isn't as strong as some kiddos so he gets sick quite frequently which brings us to his regular doctor often. He also has 10+ specialists he sees throughout the year several times each year. We have private insurance through my work and honestly it's quite decent compared to others. Linden's deductible is $2000 each year, which we reach that pretty early … [Read more]

Alyssa V. Phillips Foundation

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Expenses with a unique child can be outrageous for families and we are no exception. We try very hard to make life as "normal" as possible for Linden. Honestly "normal" doesn't even make sense but for the purpose of this blog I'm going to use that word, loosely. Linden's average week includes full day school, five days a week. After school he has therapies totaling six times a week. These include Occupational, Physical and Speech therapy. He also has swim lessons Thursday evening, horse therapy on Thursday and wheelchair basketball on … [Read more]

Mickey Mouse Dreams….

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Our family had an amazing opportunity...we got to meet so many celebrities, eat some deliciously adventurous food, watch Broadway shows with some of our favorite people, and wake up with the fresh sea air every morning. We went on a Disney cruise! We were blown away by the accommodations they made for our little Linden. They paid each and every detail to his needs and nothing was overlooked. Our gang included me, my husband, Linden (of course) and my in-laws. Our group of five were a stellar vacation clan and we had a blast! We had two next … [Read more]

Wheelchair Basketball

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I figured Linden didn't have enough to do so I signed him up for basketball. Through Linden's twin friends we found out that the Southwest YMCA here in Austin accommodates kiddos in wheelchairs on their mainstream teams. I got in touch with the director and we were well on our way with getting Linden signed up. His first game is coming up so I thought it would be great to get a practice in. Unfortunately the Southwest YMCA didn't have any court space available last Saturday so I reserved Hays YMCA. The plan was just to have us, the twins and … [Read more]

Just any other busy Thursday…

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I have one tired little man...who am I kidding...I'm exhausted! Our days are always filled with go, go, go. It feels like we're energizer bunnies with constantly charged batteries. I often wonder how in the world Linden handles such busy days. I know he's tired, beyond the possibility of having reason or the capability to do much in the evenings. Even knowing this, I still keep him enrolled in his evening activities. He enjoys them and talks about them fondly. I'm sure a break ever now and again would be good. Now on to our crazy busy … [Read more]

New Wheels

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Finally after what feels like eternity, insurance has approved Linden's new wheelchair and it was delivered yesterday. With its flashy red wheels and tricked out functions, Linden is riding in style. It took a bit to get to this point. We have private insurance and boy has it been a hassle to get it approved. I believe the entire process took 9 months. His first chair was starting to break, pieces falling off but most importantly he was way to big for it. His weight became to much for it and it tipped quite a bit. After 3 attempts for … [Read more]

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img_5695Amanda Moody

We live in a world of colorful abilities and I have been given the opportunity to share this life with an amazing son and husband.

I am a blogger, disability advocate and a Special Education teacher. I obtained my teaching instruction from Region 13 and am currently working in a near by school district. I received my Associates degree from Austin Community College in Sign Language Interpreting and my Bachelor’s from Texas A&M University-Commerce in Applied Arts and Science.

Using my 11 years experience at the Texas School for the Deaf and a mother to a special little guy has proved to be helpful along my career journey. These things have led me down the road to become a teacher. I am grateful for this journey as it led me to my passion.

I have an adorable and vivacious son named Linden. He is fearless and blissfully happy. He was diagnosed with Cerebral Palsy along with many other disabilities/abilities. Don’t be fooled by his wheelchair or walker, as he can do so much more than most. He is a strong-willed child, highly motivated, and a great negotiator (always negotiating for more cookies). I find myself advocating for him daily ranging from his education, private services, equipment needs, and community accessibility. With my dedication to him and to many other friends with children with needs; I have made it my purpose to help them in any way I can.

My amazing, selfless, and kindhearted husband, William, has stood by my side during the entire time of my goal-planning journey. He is a firefighter, awesome dad, and wonderful husband. His commitment to his community and his family is unremitting.

These two are my everything. They are my guiding light, support and motivation to accomplish my goals. I dedicate this site to them. For without them this wouldn’t of been possible. I love you guys!

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